When and where did you begin the project? When did you turn in the final draft?
LH: I began the research in the fall of 1996, while writing the article for
WN: Much has been said and written about the illness that has plagued you for years, a condition apparently prompted by a case of food poisoning that you suffered in 1987: Chronic Fatigue Syndrome exacerbated by vertigo. Could you recall how and when you first came down with this condition? What are the symptoms?
LH: In the spring of 1987 I was a sophomore at Kenyon College, majoring in English and history. I was nineteen, healthy and fit, playing tennis and cycling several times a week. On the night of March 20th, while traveling back to Kenyon from spring break, I developed apparent food poisoning, and became sick enough that my roommates called paramedics. For three weeks, I couldn’t seem to shake the stomach upset. Then one morning, I awoke so weak that I was unable to sit up. It took me two hours to work up the strength to stand. I expected the exhaustion to pass, but it didn’t. For weeks, I couldn’t even make the short walk to the dining hall. There was no way for me to attend class or do my work, so I had to drop out of school. I spent the next eight months bedridden. I was under siege from constant infections, unremitting fever, chills, soaking night sweats, acute light sensitivity, balance and cognitive problems. In the first month alone I lost twenty pounds, weight I couldn’t afford to lose; I finally leveled off at one hundred pounds. I was diagnosed with Chronic Fatigue Syndrome by the head of infectious diseases at Johns Hopkins.
Though my health has fluctuated since then, and at times I have enjoyed improvement, I’ve never recovered. There have been stretches, sometimes lasting several years, in which I have been totally bedridden. In early 1993, I developed extremely severe, chronic vertigo—a neurological abnormality apparently caused by CFS—which causes the sensation of spinning, pitching, and rolling. For two years, I was unable to read or write because of it. I have been dealing with the vertigo, on top of my other symptoms, on some level ever since, and it continues to make reading and writing very difficult.
WN: How did the illness affect your ability to write the book? Were there long periods when you could neither do research nor write? Did you get discouraged, at times? What kept you going?
LH: Writing this book was immensely important to me, but my illness made it very hard. I had to accept that there would be a large physical price to pay for undertaking this project, and that I would have to pare away the rest of my life to save my strength for what I wanted to do. For the four years that I researched and wrote this book, I did virtually nothing else. I devoted everything I had to it. I had my office set up so that there was a refrigerator, cereal boxes, bowls, spoons, and a giant jug of water right by my desk, allowing me to keep working without wasting energy on fixing meals. I stacked my research books in a semicircle on the floor around my chair so I wouldn’t have to get up to get them. I couldn’t travel to my sources, but found ways around that by making maximum use of the Library of Congress’ interlibrary loan service, the Internet, my fax machine, email, and, of course, my telephone. For the most part, my body held together. I worked whenever I had strength, sometimes at odd hours, and I often worked until completely exhausted and dizzy. There were days when it was almost impossible to move, but I usually found something I still had the strength to do. If I was too dizzy to write, I did interviews. If I was too weak to sift through books, I sat still and wrote. Sometimes I worked while in bed, lying on my back and scribbling on a pad with my eyes closed. Though it was hard to do this, there was never a point at which I became discouraged. These subjects were just too captivating for me to ever consider abandoning the project. The price I paid was steep. Within hours of turning in the manuscript, my health collapsed completely. The vertigo returned in force, and I was unable to read or write at all for several months. I also became markedly weaker and was rendered almost entirely housebound again. Well over a year later, I still haven’t completely recovered. But it was worth it.
As difficult as the illness made the writing and research process, I think I also have it to thank for spurring me into the project. Being sick has truncated my life dramatically, drastically narrowing the possibilities for me. For fifteen years, I have had very little contact with the world. The illness has left me very few avenues for achievement, or for connecting with people. Writing is my salvation, the one little area of my life where I can still reach out into the world and create something that will remain after I am gone. It enables me to define myself as a writer instead of as a sick person. Because of this, I felt an immensely powerful motivation for writing this book, and writing it as well as I could.
WN: No book on horse racing—and very few on any sport—has ever held the top spot on the
LH: Wildest dreams have a long reach. I think every writer dreams of having a No. 1
When I first imagined making this story into a book, my hope was that I could find a small equine-topics publisher that would be interested in it. I hoped to be able to sell maybe 5000 copies, out of the trunk of my car if I had to. That was okay with me. I just wanted to tell this story. Even after Random House bought the book rights, and Universal Pictures the movie rights, I kept my aspirations very modest. So I really wasn’t prepared for the call I got in March, 2001 from my wonderful editor, Jon Karp, telling me that after only five days on sale, the book was already on the best-seller list, at No. 8. It was No. 2 the following week, and hit No. 1 the week after that.
That phone call began a very wild ride. After having lived in complete obscurity and isolation for so many years, I was suddenly on TV and radio, and in newspapers and magazines. In one day, I was interviewed seventeen times.