week. He backed the car out of the garage one morning and could barely push the brakes. That was the end of his driving.
He kept tripping, so he purchased a cane. That was the end of his walking free.
He went for his regular swim at the YMCA, but found he could no longer undress himself. So he hired his first home care worker—a theology student named Tony—who helped him in and out of the pool, and in and out of his bathing suit. In the locker room, the other swimmers pretended not to stare. They stared anyhow. That was the end of his privacy.
In the fall of 1994, Morrie came to the hilly Brandeis campus to teach his final college course. He could have skipped this, of course. The university would have understood. Why suffer in front of so many people? Stay at home. Get your affairs in order. But the idea of quitting did not occur to Morrie.
Instead, he hobbled into the classroom, his home for more than thirty years. Because of the cane, he took a while to reach the chair. Finally, he sat down, dropped his glasses off his nose, and looked out at the young faces who stared back in silence.
“My friends, I assume you are all here for the Social Psychology class. I have been teaching this course for twenty years, and this is the first time I can say there is a risk in taking it, because I have a fatal illness. I may not live to finish the semester.
“If you feel this is a problem, I understand if you wish to drop the course.”
He smiled.
And that was the end of his secret.
ALS is like a lit candle: it melts your nerves and leaves your body a pile of wax. Often, it begins with the legs and works its way up. You lose control of your thigh muscles, so that you cannot support yourself standing. You lose control of your trunk muscles, so that you cannot sit up straight. By the end, if you are still alive, you are breathing through a tube in a hole in your throat, while your soul, perfectly awake, is imprisoned inside a limp husk, perhaps able to blink, or cluck a tongue, like something from a science fiction movie, the man frozen inside his own flesh. This takes no more than five years from the day you contract the disease.
Morrie’s doctors guessed he had two years left. Morrie knew it was less.
But my old professor had made a profound decision, one he began to construct the day he came out of the doctor’s office with a sword hanging over his head. Do I wither up and disappear, or do I make the best of my time left? he had asked himself.
He would not wither. He would not be ashamed of dying.
Instead, he would make death his final project, the center point of his days. Since everyone was going to die, he could be of great value, right? He could be research. A human textbook.
Morrie would walk that final bridge between life and death, and narrate the trip.
The fall semester passed quickly. The pills increased. Therapy became a regular routine. Nurses came to his house to work with Morrie’s withering legs, to keep the muscles active, bending them back and forth as if pumping water from a well. Massage specialists came by once a week to try to soothe the constant, heavy stiffness he felt. He met with meditation teachers, and closed his eyes and narrowed his thoughts until his world shrunk down to a single breath, in and out, in and out.
One day, using his cane, he stepped onto the curb and fell over into the street. The cane was exchanged for a walker. As his body weakened, the back and forth to the bathroom became too exhausting, so Morrie began to urinate into a large beaker. He had to support himself as he did this, meaning someone had to hold the beaker while Morrie filled it.
Most of us would be embarrassed by all this, especially at Morrie’s age. But Morrie was not like most of us. When some of his close colleagues would visit, he would say to them, “Listen, I have to pee. Would you mind helping? Are you okay with that?”
Often, to their own surprise, they were.
In fact, he entertained a growing stream of visitors. He had discussion groups about dying, what it really meant, how societies had always been afraid of it without necessarily understanding it. He told his friends that if they really wanted to help him, they would treat him not with sympathy but with visits, phone calls, a sharing of their problems—the way they had always shared their problems, because Morrie had always been a wonderful listener.
For all that was happening to him, his voice was strong and inviting, and his mind was vibrating with a million thoughts. He was intent on proving that the word “dying” was not synonymous with “useless.”
The New Year came and went. Although he never said it to anyone, Morrie knew this would be the last year of his life. He was using a wheelchair now, and he was fighting time to say all the things he wanted to say to all the people he loved. When a colleague at Brandeis died suddenly of a heart attack, Morrie went to his funeral. He came home depressed.
“What a waste,” he said. “All those people saying all those wonderful things, and Irv never got to hear any of it.”
Morrie had a better idea. He made some calls. He chose a date. And on a cold Sunday afternoon, he was joined in his home by a small group of friends and family for a “living funeral.” Each of them spoke and paid tribute to my old professor. Some cried. Some laughed. One woman read a poem:
Morrie cried and laughed with them. And all the heartfelt things we never get to say to those we love, Morrie said that day. His “living funeral” was a rousing success.
Only Morrie wasn’t dead yet.
In fact, the most unusual part of his life was about to unfold.
The Student
At this point, I should explain what had happened to me since that summer day when I last hugged my dear and wise professor, and promised to keep in touch.
I did not keep in touch.
In fact, I lost contact with most of the people I knew in college, including my, beer-drinking friends and the first woman I ever woke up with in the morning. The years after graduation hardened me into someone quite different from the strutting graduate who left campus that day headed for New York City, ready to offer the world his talent.
The world, I discovered, was not all that interested. I wandered around my early twenties, paying rent and reading classifieds and wondering why the lights were not turning green for me. My dream was to be a famous musician (I played the piano), but after several years of dark, empty nightclubs, broken promises, bands that kept breaking up and producers who seemed excited about everyone but me, the dream soured. I was failing for the first time in my life.
At the same time, I had my first serious encounter with death. My favorite uncle, my mother’s brother, the man who had taught me music, taught me to drive, teased me about girls, thrown me a football—that one adult whom I targeted as a child and said, “That’s who I want to be when I grow up”—died of pancreatic cancer at the age of forty-four. He was a short, handsome man with a thick mustache, and I was with him for the last year of his life, living in an apartment just below his. I watched his strong body wither, then bloat, saw him suffer, night after night, doubled over at the dinner table, pressing on his stomach, his eyes shut, his mouth contorted in pain. “Ahhhhh, God,” he would moan. “Ahhhhhh, Jesus!” The rest of us—my aunt, his two young sons, me—stood there, silently, cleaning the plates, averting our eyes.
It was the most helpless I have ever felt in my life. One night in May, my uncle and I sat on the balcony of his apartment. It was breezy and warm. He looked out toward the horizon and said, through gritted teeth, that he wouldn’t be around to see his kids into the next school year. He asked if I would look after them. I told him not to talk that way. He stared at me sadly.
He died a few weeks later.
After the funeral, my life changed. I felt as if time were suddenly precious, water going down an open drain, and I could not move quickly enough. No more playing music at half-empty night clubs. No more writing songs in my apartment, songs that no one would hear. I returned to school. I earned a master’s degree in journalism and took the first job offered, as a sports writer. Instead of chasing my own fame, I wrote about famous athletes chasing
