has a special knack for explaining abstractions; Dr. Chris Morrison at the New York University Medical Center, who was so crucial to my understanding of the brain’s “glitches”; Dr. Vincent Racaniello at Columbia University, who shared his knowledge of the awesomeness of viruses; Dr. Philip Harvey at the University of Miami, who showed me how my disease fits within the study of schizophrenia; Dr. Robert Lahita at Newark Beth Israel, who spent hours on the phone bantering about phagocytes; Dr. David Linden at Johns Hopkins University, who patiently explained to me the role of NMDA receptors in the brain; Dr. Joel Pachter at the University of Connecticut, who revealed how the blood-brain barrier works; and, finally, Dr. Henry Roediger III at Washington University in St. Louis and Dr. Elizabeth Loftus at the University of Washington, for explaining false-memory research.
I am grateful to the librarians of the library at the New York Academy of Medicine and at the New York Public Library, and to my fellow science writers at Columbia’s NeuWrite group who helped me accurately navigate through the more intricate scientific passages.
To the incredibly brave survivors and families who have so generously made me a part of their lives: Nesrin Shaheen and her daughter Sonia Gramcko; Emily, Bill, and Grace Gavigan; Sandra Reali; Cheryl, Tony, and Jayden Liuzza; Kiera Givens Echols; Angie McGowan; Donna Harris Zulauf; Annalisa Meier and her parents; and so many others.
To Paul McPolin, my straight-shooting
Thank you to Katie Strauss for the stuffed rat, Jennifer Arms for the pumpernickel bagel, Lindsey Derrington for visiting me all the way from St. Louis, Colleen Gutwein for those gorgeous pictures of Cambodia, Mackenzie Dawson for her Sartre quote, and Ginger Adams Otis and Zach Haberman for taking care of Dusty when I wasn’t able to.
To the
To the friends and family who offered up their valued perspectives: the Goldmans, the Fasanos, Rosemarie Terenzio, Bryan Cirelli, Jay Turon, Sarah Nurre, Frank Fenimore, Kelsey Kiefer, Calle Gartside, David Bernard, Kristy Schwarzman, Beth Starker, and Jeff Vines. And thank you to Preston Browning, who offered me a place to write at his charming Wellspring House, which has become my second home.
And, finally, thank you to the “purple lady,” whose name I still don’t know.
ILLUSTRATION CREDITS
Illustration by Morgan Schweitzer: pages 1, 42, 73, 117, 173, 235, 251
Medical record: pages 75, 90, 92, 119
Illustration by Morgan Schweitzer and Susannah Cahalan: page 132
Images from Dr. Josep Dalmau, University of Pennsylvania, Department of Neurology: page 148
Images from Dr. Souhel Najjar, NYU Medical Center, Departments of Neurology and Neuropathology: page 219
ABOUT THE AUTHOR
Susannah Cahalan began her investigative reporting career at the
JACKET PHOTOS: (TOP) COURTESY OF THE AUTHOR;
(BOTTOM) KEVIN TRAGESER/IMAGE BANK/GETTY
COPYRIGHT © 2012 SIMON & SCHUSTER
NOTES
CHAPTER 1: BEDBUG BLUES
1 those suffering from parasitosis: Nancy C. Hinkle, “Delusory Parasitosis,”
2 releasing millions of virus particles: Vincent Racaniello, “Virology 101,”
CHAPTER 4: THE WRESTLER
3 “I used to try to forget about you”: Robert D. Siegel,