So, regarding concrete advice. I would highly recommend, if he hasn’t already, that your son get genetically tested. Even though you are looking at surgical resection as a cure, it’s always good to have things in the armory, in the unlikely event the tumor did recur.
Please feel free to ask me anything. I am always here to help.
Best Wishes,
Chemoforlifer
Admin
Re: Can anyone help us?
by Trustingod» Wed May 21, 2014 11:44 am
Sorry to hear this Rob, although, as you say, there is much to be hopeful about. We are in a similar position, although our baby was diagnosed a few months ago. We have found that our faith has been such a comfort to us in these difficult times. May God put his healing hands on your little boy. I will be praying for you and your family.
I stopped reading. These people weren’t us. They were the desperate parents you read about in magazines, who watched as their children slipped away. We had nothing in common, because Jack was so alive; the doctor had said he would be cured. Suddenly I needed to see him, to touch him, and recently these moments had become more frequent and painful, like crippling attacks of gout.
I was just about to close my laptop and go downstairs when a little mail icon pinged to let me know I had received a private message through the forum. It was from someone called Nev.
Subject: Hello
Sent: Wed May 21, 2014 10:16 pm
From: Nev
Recipient: Rob
Hello, Rob. I’m sorry to hear about Jack’s situation, although it sounds like you have a huge amount to be hopeful about.
I wanted to tell you my story, in case things don’t work out as planned. My son Josh was diagnosed with glioblastoma three years ago, when he was six. The doctors basically wrote him off. After they removed the tumor, they said there was nothing they could do, that it would definitely grow back and all they could offer was chemo and radiation as palliative care.
That was when I found out about Dr. Sladkovsky. Before you stop reading, hear me out. This is a legitimate clinic based in Prague. It’s not a cactus juice for a thousand pounds a pop cancer clinic. This is cutting edge stuff and utilizes all the latest treatments, in particular what’s called immuno-engineering.
Going to Prague was a risk of course. But we took it and our Josh underwent a variety of treatments. To cut a long story short, six months later, the tumor was gone and it hasn’t been back since. He is now a happy nine-year-old, living a normal life, and cancer is beginning to become a distant memory.
I have been banned from posting links to Dr. Sladkovsky on Hope’s Place (the software doesn’t even let me send them in private messages) so all I can say is Google Dr. Sladkovsky in Prague and you will find everything you need to know.
If you want to find out more about Josh’s treatments, please check out my blog at nevbarnes.wordpress.com or feel free to message me.
I wish you the best of luck. I’m crossing fingers and legs and toes and everything really. PM me if you want more info.
Nev
Nev sounded like a con man. I put the name “Sladkovsky” into the search field on Hope’s Place and hundreds of results popped up.
PLEASE READ re Sladkovsky Clinical Trial
by Chemoforlifer» Mon Jan 26, 2012 6:03 am
Dear All,
Regular users of the board might have seen several posts by Nev about a proposed clinical trial run by Dr. Sladkovsky. These posts no longer exist and have been deleted by the moderators. They were deleted because they explicitly violated the “no solicitation or promotion” rule.
There have been extensive discussions of Sladkovsky’s clinic on this board. One of the threads is here, for new users who maybe are not familiar with the clinic’s “work.”
forum.hopesplace.topic/article/1265%444
Dr. Sladkovsky’s clinic is not reputable. He has never allowed his immuno-engineering treatments to be evaluated in an independent, accredited clinical trial, nor has he ever shared the results of his work with other researchers. Every reputable cancer-treatment watchdog has concluded that his “immuno-engineering” treatment is a scam.
Best Wishes,
Chemoforlifer
Admin
I was angry and considered writing this Nev back, telling him what I thought about people preying on the parents of sick children, peddling fake cures over the internet. I read his message again. He was convincing and seemed to believe what he was writing. That, I supposed, was how he reeled people in. I logged out of Hope’s Place, closed my laptop and went to find Anna and Jack.
10
It was early evening and Jack could not sleep. It was a side effect of the steroids, which reduced the swelling from the fluid around the tumor. The operation was now only a week away, and Jack was antsier than ever. We tried to tire him out, reading him stories, letting him watch cartoons, but sometimes the only thing that would work was going out for a walk.
“How are you feeling today, beautiful?” I asked, as we walked along one of the winding paths up the hill to the heath. “How are your injuries?”
We had told him that he had an injury in his head and would have to go to hospital to take it away. Jack wasn’t remotely concerned. He seemed to think it was nothing more serious than a grazed elbow or a funny tummy. Last year, he had fallen off our backyard wall and had to go to hospital for stitches in his chin. Would it be the same? he said. Even better, we replied. He would be asleep and wouldn’t feel a thing.
Jack patted his head, as he did now, now that he knew something was wrong. “I think it’s fine, but...”
He dithered, scuffed his shoe along the path.
“But what, Jack?”
“It’s difficult sometimes, in school, to think.”
“Yeah?”
“We did sums today with Miss Jackson and I...” His words trailed off.
“And did you find it difficult?”
“Yeah. Adding up and doing sums and...and... I had forgotten my numbers.”
“Well,” I
