[2]
There's a train to Grimshaw leaving Union Station at noon, which gives me three hours to pack an overnight bag, hail a cab and buy a ticket. An everyday sequence of actions. Yet for me, such tasks—pack a bag, hail a cab— have become cuss-laced battles against my mutinous hands and legs, so that this morning, elbowing out of bed after a night of terrible news, I look to the hours ahead as a list of Herculean trials.
Shave Face without Lopping Off Nose.
Tie Shoelaces.
Zip Up Fly.
Among the fun facts shared by my doctors at the time I was diagnosed with Parkinson's was that I could end up living for the same number of years I would have had coming if I hadn't acquired the disease. So, I asked, over this potentialy long stretch, what else could I look forward to? Some worse versions of stuff I was already experiencing—the involuntary kicks and punches—along with a slew of new symptoms that sounded like the doctor was making them up as he went along, a shaggy-dog story designed to scare the bejesus out of me before he clapped me on the shoulder with a 'Hey! Just kidding, Trevor. Nothing's
Let's try to remember what I do my best to forget:
A face that loss of muscle control wil render incapable of expression. Difficulties with problem solving, attention, memory. The sensation of feeling suffocatingly hot and clammily cold
For now, though, I'm mostly just slow.
This morning, when my eyes opened after dreams of Ben caling for help from behind his locked bedroom door, the clock radio glowed 7:24. By the time my feet touched carpet it was 7:38. Every day now begins with me lying on my back, waiting for my brain to send out the commands that were once automatic.
Sit up.
Throw legs over side of bed.
Stand.
Another ten minutes and this is as far as I've got. On my feet, but no closer to Grimshaw than the bathroom, where I'm working a shaky blade over my skin. Little tongues of blood trickling through the lather.
And, over my shoulder, a woman.
A reflection as real as my own. More real, if anything, as her wounds lend her swolen skin the drama of a mask. There is the dirt too. Caked in her hair, darkening her lashes. The bits of earth that refused to shake off when she rose from it.
That I'm alone in my apartment is certain, as I haven't had a guest since the diagnosis. And because I recognize who stands behind me in the mirror's steam. A frozen portrait of violence that, until now, has visited me only as I slept. The face at once wide-eyed and lifeless, stil in the mounting readiness of al dead things.
Except this time she moves.
Parts her lips with the sound of a tissue puled from the box. Dried flakes faling from her chin like black icing.
To pul away would be to back into her touch. To go forward would be to join her in the mirror's depth. So I stay where I am.
A blue tongue that clacks to purpose within her mouth. To whisper, to lick. To tel me a name.
I throw my arm against the glass. Wipe her away. The mirror bending against my weight but not breaking. When she's gone I'm left in a new clarity, stunned and ancient, before the mist eases me back into vagueness so that I am as much a ghost as she.
Impotence. Did I fail to mention that this is coming down the pike too? Though I could stil do the deed if caled upon (as far as I know), I have gone untested since the Bad News. I think I realized that part of my life was over even as the doc worked his lips around the P-word.
Is
And let's face it, the shoe fit pretty wel for a while: an unmarried, al-night-party-hosting nightclub owner. Trevor, of Retox. Girlfriends al beautiful insomniacs with plans to move to L.A. I don't know if any of them could be said to have gotten to know me, nor did they try. I was
And then the doctors stepped in to poop on the party. Within three weeks of the Bad News I sold Retox and retreated into the corners of my underfurnished condo to manage the mutual funds that wil, I hope, pay for the nurses when the time comes for them to wheel, wipe and spoon. Until then, I do my best to keep my condition a